Motherhood – One Special Journey

As a pregnant 39-year-old soon-to-be mother, I had no idea of motherhood. I could read books on the subject and still have no inkling what my future as a mother would look like. My focus instead became eating right and wondering how I would look in maternity clothes.

Soon the time came for my first sonogram appointment. We were two giddy parents excited to find out our child’s gender. We would rejoice either way. I had a name picked out for a girl but not for a boy. We’d have to contemplate boy’s names depending on the sonogram results.

I’d never had a sonogram before. I expected to see clearly the outline of my child and perhaps even decipher gender. Instead, the reality did not depict what I’d seen in the movies. I couldn’t make out anything on the screen. The technician’s silence confused me. She abruptly ended the session motioning for me to change. I brushed off the exchange hoping the doctor would explain things to me.

Motherhood Part 1
It’s a Boy

The doctor arrived to meet us in his office with a long computer printout in his hands. He told us we were having a son. My husband and I exchanged a look of pure joy. But, this joy turned to concern as the doctor proceeded to tell us our son’s growth was behind, significantly. He recommended we have a high level sonogram completed to know more.

My breathing shallowed. I clasped my chair wanting to bolt from the office. After the doctor shared my son’s measurements and his concerns, we agreed to have a high level sonogram done. And then we quickly left.

My first act of motherhood was a fierce desire to protect my boy and prove the doctors wrong. My son may be small, but he would grow, I consoled myself. In the months to follow, the predictions of my son’s health grew from concerning to dire. As in “not compatible with life” and “lethal”.

I mentally battled these dire reports. No guide told me how to be a mother when faced with these circumstances. I lived on faith and prayer. And an inner knowing everything would be okay despite the predictions.

First Days of Motherhood
Samuel at Two Weeks Old

The day arrived. My son entered this world diagnosed with a rare and lethal form of dwarfism called Thanatophoric Dysplasia. Seeing my son in the NICU, I did not see a diagnosis but a beautiful child I prayed with every fiber of my being to survive. His arrival began an introduction to a medical world I never knew. It also began my role as a mother… as a special needs mother. What prepares you for such a role?

For me, one family in the NICU stood out as an example. Placed in an incubator next to my son’s crib, a member of this wee girl’s family stayed by her side constantly. Love dominated their devotion to this child. So, I followed suit.

I stayed by my son’s side while on maternity leave. Once back on the job, I would visit before work, at lunch and after work until the NICU closed for the night. Six months later, my son came home from the hospital with loads of equipment and full-time nursing care. I’d also received intensive training in special needs motherhood. Being present, learning how to care for my son’s needs and a protective momma bear instinct I’d never known before.

My son is now an 11-year-old full of life, joyous boy. If I were to sum up my motherhood experience in a few words, I’d say, “love and prayer.” And special; very special. How is your motherhood journey special?

Motherhood An Exciting Journey
Samuel’s Smile

Evelyn Mann
www.miraclemann.com/blog
www.facebook.com/amiraclemann

Evelyn Mann is a stay-at-home mom who lives in Tampa, Florida raising her special needs son, Samuel. Her son was born with a rare form of dwarfism called Thanatophoric Dwarfism and is only one of a handful of survivors. He is fourteen-years-old and has exceeded medical expectations. Evelyn is an author of a memoir, Miracle In My Living Room: The Story Of A Little Mann. Her new devotional is called Thriving Through Your Trials: Devotions of Miracles, Faith & Prayer. Her popular blog is found at www.miraclemann.com/blog. She receives inquiries from around the world asking about her son’s miraculous survival. Follow Samuel's amazing journey at www.instagram.com/miraclemann17.

10 COMMENTS

  1. Love and prayer..Exactly! I told my son and grandson…they were kissed by angels. I wrote my story for LPA which Billy Barty was the founder. Mr Barty called our home a few times to talk and ask if they could use the story in a pamphlet that would be used in hospitals, doctors offices, clinics..wherever they might be needed. I don’t know if that ever happened. Thank you Evelyn for sharing. Samuel…though long distance..I love you more each time I see your photo and read your family story. You are, young man, an angel!

    • Thanks, Cecilia for sharing the sweet story of your son and grandson. I hope Mr. Barty used your story. Thanks for cheering us on in sharing our little man.

      Hugs, Evelyn

  2. so enjoyed reading and reliving the journey! Makes you want to read and learn more and more! He is precious and you truly are amazing. Hugs!!!

  3. What a beautiful post. Yes, the Lord definitely carries us through the hard times. He’s with us, and He has most certainly blessed you with a beautiful little boy that I know is a joy in your life. Thank you for sharing your story.

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